Having a complex and rare gentic medical condition (1 in 2,000) can be hard! It can require having to be seen by mulitple doctors, multiple surgeries, and even needles. It can even mean having to learn how to live in an adult world with the height of a child! It can mean a lot of challenges socially and emotionally, Most people think that a medical condition thinks you are disabled, but with Turner Syndrome it is in most cases not like that at all! We have normal to above average intellegence and live very full lives! We just have a genetic medical condiiton that causes bumps in our lives.
I have had SO many AMAZING experiences because of having Turner Syndrome that I can honestly say as that much as having TS has taken away from me, it has also enriched my life so many ways! Here are some of the fun and amazing things I have gotten to experience just because I have TS! Most have taken place at a National Turner Syndrome Conference unless otherwise specified.
1) See Mount Rainer and the Pacific Ocean
2) Spend a day in Estes Park/Rocky Mountain National Park with a butterfly and her amazing parents who let me tag along!
3) Fly to Phoenix the day before my 29th birthday and getting to spend my birthday with one of my friends at the Grand Canynon and spending the night there!
4) Getting to go Disneyland and California Adventures.
5) Getting a behind-the-scences tour of the Grand Old Opery and Ryman!
6) 2 road trips to Sedona with my friend!
7) Going to Washington DC and getting a tour of the Capital and Fords Theature. Seeing all the momuments and most museums with my friends.
8) Going to Stockyards in both Dallas and Fort Worth.
9) Going to the Nashville Zoo, Phoenix Zoo, Dallas Zoo and Fort Worth Zoo.
10) Spending a weekend with 3 friends in Chicago on the Navy Peir, going on a ferris wheel at night to see the Chicago skyline, and fireworks over the pier. Got to see a lot of Chicago outside of the peir to.
11) Going to Houston, Texas. Going to the Houston Musuem of Natural Science, getting a bus tour of Houston, going to the downtown aquarium, see the city lit up at night. Going to the Houston NASA Space Center!
These are just the main experiences that I have the privelege of having and on the hard days, I realize how blessed I am to have this condition because of everything and everyone it has added to my life!!!
